The Black Flag Outpost at Foxsports.com
by: ccr1d3r
Derek Fisher and Me
Sep 21, 2007 | 8:34PM | report this

Not the Usual Black Flag-- This One is Serious, Personal and Potentially Life Saving.

UPDATE (3:47P.M. Eastern - 9/24):  CJ does NOT have retinoblastoma or any other form of cancer.  He is having surgery on Wednesday, but his condition is not in any way life threatening.  There is so much more to this, but I wanted to get this much out as soon as I could.  I'm going to try for a new post later tonight with more.

The outpouring of support we have gotten from this community is something we will never forget. 

On May 7th, point guard Derek Fisher missed the first game of the Utah Jazz's playoffs against the Golden State Warriors. He rejoined his team three days later in the middle of the third quarter during the second game in Salt Lake City.

Fisher provided a key fourth quarter turnover in that game and hit a three pointer in overtime to help the Jazz take a 2-0 lead over the Warriors.

Fisher had left a hospital in New York City that afternoon where his 10 month old daughter Tatum had just been diagnosed with and was being treated for a disease called retinoblastoma -- cancer of the retina. It is a rare, life threatening disease that only 350 children a year are diagnosed with in the United States.

On Wednesday this week, my four year old son CJ joined Tatum Fisher in being one of those 350 kids who will get that diagnosis this year.

Without a doubt, Wednesday was a day of shock. Thursday and Friday have been about reality.

To give you an idea of how rare this is, there are only eight medical practices in the entire country who deal with retinoblastoma.

The odds on having this disease are pretty close to what they were during a poker tournament when I flopped four 8's and had runners on the turn and river to lose to four jacks.

We live in Richmond, VA. On Monday we travel to Philadelphia to spend the day with one of those specialists.

As a longtime Redskins fan, I have a firm policy of not exposing my son to large numbers of Eagles fans.

But we've done our research, and we're very confident that this doctor is highly skilled and a real pioneer when it comes to dealing with this disease (even though it means dealing with this in the town that booed and threw snow balls at Santa Clause).

So, why am I writing about this?

Regular readers of The Black Flag come here expecting to read me goofing on somebody in NASCAR. This is a humor blog about NASCAR. In fact, right now I have the Kasey Kahne PR machine in meltdown over my Budman post, using paid shills to make comments on it.

Obviously, this piece isn't what you are used to getting here (although even in this post I couldn't stop myself taking a few shots).

The key to surviving retinoblastoma is early detection. That's the entire ballgame.

There is only one reason why we even had him checked out: my wife's cousin, Cheri saw something in a photograph. Then she said something about it.


Cheri can't even remember where she heard about this, but she just knew she had.

See the white glow in the left eye? That is the symptom. That's what to look for. Sure, it could be something else. But that is the number one way it is detected -- flash photography.

So if you see it in a child's photo, say something.

If you know someone who is a professional children's photographer, ask them to be on the lookout for this. People you know who work with children, tell them about this.

But most of all, if you have kids, look at their pictures.

Right now, we don't know for certain that we have caught CJ's in time. We think we have. We have a number of reasons to be optimistic we have. We'll probably know on Monday.

But the only reason we even know there is a problem is that somebody did him a life saving favor. So I need to do what I can to try and repay that favor to somebody else.

There are enough people who read TBF (by people I do mean in addition to the sports spy agency over at Sports Media Challenge that according to my log files monitors The Black Flag with the enthusiasm of the NSA keeping tabs on Al-Qaeda) to get the word out to make a life changing difference for somebody.

Sure, Derek Fisher has been able to reach far more people than I can, but I know I can get to a bunch he didn't. What I'd like to do is just get to the right one.

It's easy to do. It's just that very few people even know what to look for. I sure didn't. In CJ's case, nobody had even noticed any problems. He's an otherwise healthy kid and he's not in any pain.

As it stands now, CJ is coming into this as someone who has a fantastic attitude.

I've written before that about how his favorite NASCAR driver is somebody who handles himself at the track with a great attitude -- Jeff Burton.


CJ has some tough days coming down the road and they are coming real fast.

His attitude and that of everyone around him will are going to make a difference in how he comes out of this thing.

There are quite a few things we don't know right now, but one of the things we have been told is that he will be legally blind in his right eye for life.

As strange as it sounds, that's an outcome we'll happily accept. What matters is that he pulls through this. There are plenty of kids who have to face far, far worse.


As tough as this has been, we've been touched and amazingly blessed by so many people who have already reached out to help and have done so in ways we couldn't expect or didn't even know to ask for.

For those you who want to know what you can do to help....


First off, prayer helps, prayer matters. By my last count, the only deity who isn't getting an earful from a whole bunch of people about CJ is Mohammad. He can always use more.

If you are involved in an organization that helps with cancer, sick children, blindness, or something else that makes this a good fit and you want to get in touch with me, contact me through this link here (if you want to push some alternative medical therapy, please don't -- I promise you that my reaction to that will be something you won't enjoy).

At this point, we still don't know which way is up and what all he is going to need. So we don't know what to ask for. I might not have a clue about what all is going to happen next, but I already know we can't do this on our own.


We wouldn't even to be getting him what he needs on Monday without the help we've already gotten.

But more than anything else you can do, next time you see a picture of a kid, just take a look at the eyes. You might just save their life.


As you might gather, over the next week or two you probably won't be seeing as much from me as you normally would.

However, much to the chagrin of the NSA types at Sports Media Challenge (KGB types if they have any IRL clients), I will be back soon and bringing the smack and the funny down harder than ever.

54 Comments | Add a comment   categories: NASCAR, Retinoblastoma, Nextel Cup, Jeff Burton, Washington Redskins, Derek Fisher, Black Flag, NASCAR Mafia
 
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Lisa H
Sep 21, 2007
8:55 PM
cc...this broke my heart. Can you please set up a site where bloggers can give to help out expenses? A paypal account would suffice...we all know you. Cindi was the first reciepient.. I nominate CJ as the second.

My heart is heavy after reading this...I know the symptoms and purposely DON'T turn off the anti-red-eye feature on my camera when photographing my kids.

Please know that I will pray for your family, and would like to encourage you to start up a site where we can donate to help defray costs in some small way. WE are family...and I care.

God Bless, and stay strong. CJ and your wife need your strong shoulders. I am standing by if you need support.
Hugs,
Lise

.

klvalus
Sep 21, 2007
9:16 PM
CCR- I applaud your willingness to make public this very private ordeal to educate and help others.

Sending every kind of positive thought your family's way (esp. knowing you have to face those Eagles fans...) and I SECOND Lisa's suggestion to set up a fund so we can all help if we can.

Don't hesitate to ask for anything you might need.

slshusker
Sep 21, 2007
9:30 PM
That's some serious stuff. Family first.

jon_464
Sep 21, 2007
9:50 PM
My thoughts and prayers are with you and your family in this challenging time. I'll be willing to pitch into some type of fund.

gojimmy
Sep 22, 2007
12:20 AM
It sure shows character for you to take time to write about this rare cancer, being a 'regular' person and all. Your sense of humor and amazing optimism will be extremely valuable in helping your son to deal with this challenge now and in the future. Sending good thoughts and prayers for you and your family.

Marty Walker
Sep 22, 2007
4:18 AM
CCR, I will pray for Cj, and for you and your wife. It is hard to deal with when your child gets sick, injured and in your case, diagnosed with a cancer.

You are stronger than you think, and you have all of us backing you up. Please keep me up to date if you have time and I'll continue to support you and your family.

chuxtory
Sep 22, 2007
4:25 AM
CCr,
It's easy to see where CJ gets his attitude. His Mom and Dad have my complete respect and admiration..... and support. If I can be of any service..... I'm right down the road, feel free to call.
Our hopes and prayers are with you, and your family.
May God Bless.

ccr1d3r
Sep 22, 2007
6:58 AM
You have no idea how much all your kind words mean. I won't even pretend like I had dry eyes when I got through reading these comments.

As far as helping financially, thank you so much for offering to help. What I'd like to ask is that you sit tight on that one for just a bit. We need to take care of some administrative details on this and have a better idea of what he is going to need.

What I can tell you on that front right now is the majority of our time has been spent dealing with the business side of treatment.

Of the many things I've learned in the last three days, one is the entire system is broken in ways that no politician of any stripe has even come close to grasping.

We have really good insurance and that wasn't good enough to get CJ what he needs on Monday. The only reason he is getting it is that family members have pulled together to help him out in a big way.

Once again, I don't have the words to express how touched I am by all your comments. That support is going to be a big help in the coming days.

gambit1974
Sep 22, 2007
7:55 AM
ccr- my prayers are with you and your family. Just like you I will not pretend that i wasn't in tears reading about this rare disease. It always hits me hard when i see or hear of children haveing to go through tough things such as this. I'm an Laker fan and what made me read this was when I saw the Derick fisher press conf. about comeing back to the lakers and he talked about his child haveing this disease. once again God bless your family and i'll be waiting for any updates from you.

DWilliams
Sep 22, 2007
9:33 AM
Your son will have my prayers until the day you email me to say that he's in the clear, CCR.

Let me know if there's anything else I can do.

volfan69
Sep 22, 2007
9:55 AM
ccr, your family will be in our prayers. For now, we offer you our love and hugs. Was St. Jude Children's Research Hospital in Memphis, TN, not an option? They have a wonderful facility for the children and their families.
Everyone else, on Monday, September 24, Chili's Grill & Bar will donate 100% of their profit to cancer research for children. Monday would be a good day to eat out if you can.
www.stjude.org
1-800-822-6344

Last edited by volfan69 on September 22nd at 10:16 AM.

photogr
Sep 22, 2007
10:59 AM
CCR: I am speechless and shocked. I had noticed this abnormality a few years back taking flash shots of a friends child. At the time I wondered why the oddity in the pupils from the flash.

As is what has been said already, keep us posted.

Dave_in_Indy
Sep 22, 2007
11:57 AM
Vulnerability sucks, particularly when you feel it through a loved one. Strength of character is wonderful, particularly when you experience it through a loved one. ... particularly a child.

Keep us informed, as time allows. You'll be in my families thoughts and prayers.

Forensic2
Sep 22, 2007
12:09 PM
CCR - We may not always agree on matters on here , but when it comes to family love ones its all hands on deck.

Now on this matter Im with you 110 percent and my prayers are with you. Anything I can do to help, make up a poster as I have just finished a hole bunch of new moving avatars for many on here.

I will do anything for this to help you out.

Godbless your family for better days of joy.

Last edited by Forensic2 on September 22nd at 12:15 PM.

fuzzboss
Sep 22, 2007
2:56 PM
ccr: My thoughts & prayers go out to you & your son. Fuzz

YeeMum_
Sep 22, 2007
3:13 PM
I second most of the comments above.
And I too thank you for sharing your ordeal in an effort to get the word out.
I am quite aware of the political BS that is the "insurance" systemn. Hang in there it gets worse.

It is difficult to remember in the onset but please get a box and Keep Everything medically related Bills receipts etc.
Once again positive energy from the Pacific Northwest.

jgrace_12
Sep 22, 2007
3:28 PM
My thoughts are with you and your family. I can only imagine how you must be feeling right now.

You've done a great service to the larger community by posting this. This post has made many more people aware, and that's a good thing.

Good luck, I hope your son pulls through this.

Racechick
Sep 22, 2007
3:58 PM
It was with a heavy heart I read this, CCR. Thank you for sharing something so personal in the hopes that others can be made aware and treated in time. Sincere best wishes and mega prayers to your son and his awesome family. God be with you all and give you strength.

tvill
Sep 23, 2007
7:08 AM
CCR - CJ and your family will be in our prayers. Thank you for spreading awareness of this disease and the symptoms. As soon as I read this I began looking at my childrens photos and I am sure your efforts will help other children.

I grew up in South Jersey and there are several wonderful hospitals in Philadelphia and know people who had their children treated at Children's Hospital and the care was world class.

We will keep CJ and your family in our prayers and include him in every prayer group we know.

klvalus
Sep 23, 2007
9:55 AM
CCR- Vol, Tvill and others (myself included!) want your blog posted as BLOG of the DAY. So we are going to keep commenting on it until it is! Hang in there

HEY FOX, MAKE THIS BLOG OF THE DAY!

Last edited by klvalus on September 23rd at 9:56 AM.

YeeMum_
Sep 23, 2007
10:38 AM
klvalus-
I will get on that band wagon too

LOOK OVER HERE, FOX!

And most positive energy to you and yours!

volfan69
Sep 23, 2007
4:00 PM
Hey, FOX, this really needs to be the BOTD. Please take a look. Thanks!

Dave_in_Indy
Sep 23, 2007
4:30 PM
I have no faith that there is a reliable formula for the determination of BOTD, but certainly would be very happy to find this one at the top of the page come Monday morning.

volfan69
Sep 23, 2007
5:27 PM
I appreciate all of you that are trying to keep this post up top. It is good for ccr and his family. It is also good for all of us with children in our lives. Who knows, this could save a few more children. Thanks to all of you!

tvill
Sep 23, 2007
5:29 PM
FOX - Please make this the Blog of the Day. I know blogs are for entertainment, but in this case it could have a dramatic effect on some people's lives.

volfan69
Sep 23, 2007
5:30 PM
Marty Walker, if you read this again, would you please give it one of your "game balls?" A lot of people read the blogs Marty suggests. Also, Marty is a great guy and he does a great job with his game balls.

Last edited by volfan69 on September 23rd at 5:52 PM.

volfan69
Sep 23, 2007
6:16 PM
Come on people! Please read this and comment. This needs to be BOTD. Thanks.

Dave_in_Indy
Sep 23, 2007
6:22 PM
BOTD or I change my avatar to me, shirtless doing my best DILF pose.

jgrace_12
Sep 23, 2007
6:29 PM
This post can't be BOTD anymore. It's already been up for more than 24 hours. Unless they change the rules, it won't happen.

volfan69
Sep 23, 2007
6:30 PM
lol, Dave! Do you have any idea how much I love and respect you?

volfan69
Sep 23, 2007
6:31 PM
jgrace, it hasn't been BOTD yet. Are you serious? I'm new to all of this and I don't understand. I hope you're kidding and just commenting.

jgrace_12
Sep 23, 2007
6:37 PM
No, I'm not kidding. BOTD's are for posts that are posted in the last 24 hours. This was posted on Friday. It can't be BOTD anymore. Sorry!!

volfan69
Sep 23, 2007
6:41 PM
Thanks, jgrace. I honestly didn't know that. You are a very nice person and I appreciate you.

photogr
Sep 23, 2007
6:45 PM
Dave: That is enough to scare every body.. I will blog away like crazy. Just keep your shirt on. He He

Jgrace might have a point there.

Last edited by photogr on September 23rd at 6:47 PM.

klvalus
Sep 23, 2007
6:50 PM
I am not convinced! This blog deserves to be at the top at least under Most Interesting! We are all behind you CCR! GOOD LUCK TOMORROW IN PHILLY!

Dave_in_Indy
Sep 23, 2007
6:54 PM
Eh, ... rules ...

Was BOTD in my mind anyway, and hope that the administrator(s) will (once again) set aside the (alleged) rules.

photogr
Sep 23, 2007
7:02 PM
I am sure FOX will bend them a bit considering what is now on BOTD.

jgrace_12
Sep 23, 2007
7:05 PM
Well, I hope y'all are right. I'm afraid you're not. I know, in the past, others have clicked the "Report This" button at the top of the post. I think it lets you send a message to the admins. (I don't know for sure, I've never done it before.) You could try doing that. Explain what you want, and maybe they'll do it for you.

volfan69
Sep 23, 2007
7:18 PM
jgrace, one more time, THANK YOU! I tried your suggestion. Maybe it will work. I hope others do the same because this is such an important message. I told photo that I talked to my kids about my grandkids this weekend. I just hope this helps others to see what could be and maybe prevent a tragedy.

IowaGirl
Sep 23, 2007
7:31 PM
CCR - Good luck to you and CR and your family tomorrow. I'll be praying for you.

On a side note, shall I pray the Doc doesn't walk in with an Eagles jersey on? Or better yet, Tony Stewart socks?

YeeMum_
Sep 23, 2007
7:34 PM
Getting up there by # of comments.

That could bump it to front page news!

Last edited by YeeMum_ on September 23rd at 7:41 PM.

HotfootLori
Sep 23, 2007
8:00 PM
Guess I'm supposed to write an uplifting comment as my eyes are pouring with tears...I just returned from being out of town celebrating my son's 8th birthday.

CCR, I do hope that what everyone has said here will stick with you through the good and bad. I, more importantly, hope that your son and your family become strengthened through this and I will certainly keep your son in my prayers. God Bless and Keep You. I pray all will be well in the end :)
Lori

klvalus
Sep 23, 2007
8:39 PM
Still supporting you 100% here CCR!

vearlthepearl
Sep 23, 2007
9:35 PM
My prayers for you and your family during this tough fight.

Maveness
Sep 24, 2007
6:55 AM
Dude, I'm thinking of CJ, you and your family.

klvalus
Sep 24, 2007
8:46 AM
CCR- Its Monday and all my postive thinking is going your way in Philly.

GET THIS BLOG on BOTD!!!

ccr1d3r
Sep 24, 2007
12:57 PM
If you haven't seen my update at the top of the page already, please do. Great news.

klvalus
Sep 24, 2007
1:20 PM
AMAZING NEWS CCR!!! I am so happy you went to see the specialists and am looking forward to hearing more about what they told you. Thoughts are still with you and your family but it is a happy Monday indeed!!!

HotfootLori
Sep 24, 2007
1:48 PM
Now that is awesome to hear!!!!!

YeeMum_
Sep 24, 2007
1:54 PM
***applause***

Good news is what we all were hoping for.
I look forward to the future update as well.

I will hug my little one twice when I get home in CJ's honor!

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ccr1d3r
The Black Flag is NASCAR NEXTEL Cup news, information, commentary and humor. CCR1d3r provides his irreverent, out of the box thought provoking perspective on stock car racing at the highest level.

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